Kim sent this a few days ago and with everything that has been going on with Ed, Max and Linda I wanted to wait until things settled a little. Some of you may not be able to view it but there will be other pictures and descriptions to follow in the coming weeks. Thanks Tim & Kim. As many of you know, Tim enjoys playing around and making movies. Here is something he put together…
First an update on Ed He continues to feel okay and we are wondering if maybe we’ve experienced the last of the episodes since we’ve passed the usual number of days between them. They will probably want to do the biopsy anyway because, as the oncologist said, the lymph nodes never did return to normal. No word on the date for the stress test but since Ed can’t run on a treadmill, because of his…
UPDATE ON ED The consultation with Dr. Underhill was relaxed, informative and funny! He is the surgeon that will do the biopsy on the lymph nodes – the mediastinoscopy. We spent an hour and a half listening to him telling us all about the body and comparing it to PacMan in how it operates in certain instances. He made everything so easy to understand and even loaded the CT scans we took and sat for…
Tim sent this picture of the storm they watched rolling in. They had just visited a technology museum and were eating at an outdoor restaurant. I asked if they made it to their car or hotel before the skies opened up. Kim is the only other person I could find in the picture. Ed is fever free but is still experiencing the fatigue. This is unusual since that only happened while he was fighting…
For the last few days Ed has been feeling okay. This is the normal flow of these episodes. Dr. Siegel called this morning and wants to do a mediastinoscopy when Ed starts experiencing the onset of the fever again. He has recommended Dr. Underhill – a cardiothoracic surgeon. After reviewing all of the reports, records and scans he has rejected the idea of this being viral and said it's an unusual case (yep, that's…
Today is the beginning of their second week of vacation in Germany and they are having a great time and the weather is perfect. Octoberfest officially started yesterday so I’m sure they will be joining in all the festivities. They have stayed in some beautiful hotels and here are just a few of them.
We met Dr Siegel this morning and after a few brief moments we felt very comfortable with him. As he listened to details of what’s happened in the last 3 1/2 months he sensed our concern that no one has been able to figure out what is going on and said between he and Dr. Zweig – they will get to it. He feels it is not lymphoma based on the activity of the lymph…
The temps have slowly been creeping up a little each day and on Sunday night it hit 101.2.Monday he said he was feeling a little better and with Tylenol the temp stayed around 99. This morning it was back up to 101.8 and I called Dr. Zweig to see if there was anything more he could take besides the Tylenol. He gave him another prescription of Indocin that he had last time and it did…
Much to my surprise, last night at 7:30 Dr. Siegel called – not his secretary, not his nurse, but Dr. Siegel. He apologized for not being in touch sooner and explained he was on vacation. We knew, from Andrew, that he is a very caring and compassionate doctor and that certainly was evident with his call. He asked about Ed and how he was doing and then said his office would call today to get…
After 3 months of trying to figure out what has been going on with Ed and having no answers, we've decided to see an oncologist. After the appointment today with Dr. Zweig and having him agree it is a good idea, we will contact Dr. Siegel and set up a time to see him. This is Andrew's doctor and we feel we are making the right move in connecting with him. Dr. Zweig, and others…