The Mystery Continues

The results from the blood test that went to the Mayo Clinic are back and they are negative.   Our doctor is on vacation next week so we won't be doing anything until he returns.  We will check his temperature every day and if it does the same as before, the doctor said to treat it with Tylenol and he will continue to dig until he figures it out.  Have no idea what his next…

Life Goes O

For a month we’ve all believed that Ed had cancer and was facing months of treatments.  To go from thinking that, to hearing the words ‘there is no cancer’ can only be described as a miracle. We have so many to thank for getting us to where we are today and it’s impossible to name each of you individually.  We’ve felt the love from our family and friends here in CT and from hundreds of…

Great News

Ed had the scan this morning and by the time we got home the doctor’s office called to say they had the results and he wanted to talk to us.  They also said it was good news – we had no idea what that meant. The PET scan showed the lymph nodes were back to normal again – and there was absolutely no sign of cancer anywhere.  Dr. Zweig just kept shaking his head and…

Ed’s Scan

We still don’t have a firm diagnosis, but the doctor’s suspicion has always been that it’s lymphoma.  The scan showed swollen lymph nodes again in his stomach and chest so they will do a PET scan on Tuesday to determine where they are and which ones they will biopsy. The tricky part for Ed is that he has to come off the blood thinner for them to do that procedure and now we learn he…

Ed

Ed was doing so well for quite a while and even though we were hesitant to talk about it – we thought the last two episodes were over and done with.  Friday the fever slowly started to climb and by Sunday he was back up to 101.5+.  Called the doctor this morning and instead of doing the CT scan on Wednesday, he scheduled it for tomorrow.  Hopefully we will know more once the results are…

Update

Ed had an appointment today with his doctor and Tim suggested he wear a shirt with a big question mark on it.  So that’s what we did!  Dr. Zweig got a big laugh out of it and said, “That is so apropos.” He will be getting another round of blood tests and a CT scan in two weeks.  He said he’s never seen lymph nodes shrink like that and when he first saw the scan…

Updates

Ed slept until 8:30 am without taking any sleeping or pain pill and felt good.  He even wanted to go for breakfast at our favorite place on Stafford Avenue.  The owner always comes to our table to talk to us and wondered where we had been.  He couldn’t believe all that had happened and offered advice on what he thought we should do.  Everyone tries to help. After we got home yesterday a package arrived…

Ed is Home

Where do I begin?? First, Ed is home and he has already kissed his recliner, the remote and the computer. His blood level still wasn’t where they wanted it to be but the doctor felt he can handle adjusting it at home.  There still are no answers and Dr. Zweig (our pc dr) saw him this morning and does not feel there is a need to see an oncologist.  Without the biopsy or any other…

Ed

They will be keeping Ed another day to get his blood level back to where it needs to be.   When the doctor told him yesterday that he would be going home – I was very upset but didn’t want to ask questions with Ed there.  Came home and called the doctor’s office and was able to talk to him for a while.  I told him my concern was Ed would come home and the…

No Biopsy

They took Ed for the biopsy at 11:00 and within an hour was back with a big smile on his face.  While doing the scan to see where they wanted to do the biopsy, they found that his lymph nodes shrunk.  What all of this means we’re not absolutely sure and we’ll need to wait until the doctor talks to the radiologist and gives us more information.  It does sound more positive than it did…